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Mixed news [Jul. 7th, 2006|08:36 pm]
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The good news (thanks to Lorrie for alerting me) is that the Department of Health and Human Services changed its rules late Thursday to exempt Medicare and SSI recipients from the citizenship requirements. Since Marsha has Medicare, she should be out of the woods. Foster children and the homeless are still vulnerable, though.

I am grateful to Karen, Barbara, and Willow, who each got me contact information for lawyers, through whom I got the information that even before Thursday it was going to be possible (though discouraged) to use affidavits to establish citizenship; to Jan, bellamagic and Lake, who helped me get in touch with Karen; to Kelpie, who suggested Central Virginia Legal Aid; to northlighthero, who forwarded a friend's information about affidavits; and to everyone who offered prayers and good wishes.

The bad news is that Marsha is doing worse this week than last. The current plan is to send her back to her old nursing home Monday. I haven't been able to talk to one of her doctors, but I assume that the they dropped the idea of tube feeding through her stomach because it seemed more likely to harm than heal. I don't know if death is imminent, or if Marsha will stay on this new plateau for a while. I do wonder for the first time whether life like this can be worth it for her. The answer may be "yes": she seems to have an urgent need to talk, though talking exhausts her as much as running up multiple flights of stairs would exhaust you or me. She talks about the present, some; about our early days; about her life before that. She repeats herself a lot. It isn't clear to me whether she's forgotten what she's already said, or if she just wants to make absolutely sure I've heard her. It's probably a bit of both.

The life force that kept her alert and engaged (and cantankerous) as multiple sclerosis whittled her mobility down to her head and her left thumb -- that life force is driving her still. I watch her, and listen, and rub her forehead, and put my hand on her belly. Little enough; more than I can say.
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Comments:
From: (Anonymous)
2006-07-08 07:58 am (UTC)

Bless you, brother.

My prayers are for best outcome, whatever that proves to be. Our good sister is and has always been an amazing being. And so are you. What seems to be coming through now is her urgency to get some messages through. Whether she forgets that she said those things or whether she repeats them intentionally, the point is, they are important things for her to say. She is deeply aware of your presence. You are the Land and she is the Sea, washing over you in what waves she can still muster.

Bless you both.

Lake
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[User Picture]From: angelweed
2006-07-10 04:05 am (UTC)

Re: Bless you, brother.

Thank you!
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[User Picture]From: northlighthero
2006-07-08 01:15 pm (UTC)
I search for words this morning. Your courage and hers are awesome to witness.

Holding you in my heart, and trusting / hoping there are nearby arms to hold you in person.

Knowing that all the Gods and Guardians are walking with you and Marsha.
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[User Picture]From: angelweed
2006-07-10 04:06 am (UTC)
Thank you!
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[User Picture]From: bellamagic
2006-07-08 03:39 pm (UTC)
Glad to hear that the Medicare issue won't be hanging over your respective heads. My prayers for you both, for energy to do what what's needed at this time, and love to envelope you in comfort.
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[User Picture]From: angelweed
2006-07-10 04:03 am (UTC)
Thank you!
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From: (Anonymous)
2006-07-08 05:32 pm (UTC)

Marsha

I was out of the country the past 8 days and have just read your last 3 postings. I am sending all the positive, soul-healing energy I can muster to Marsha and to you. This is probably one of the most difficult things you will ever have to go through -- it sounds as if it is a burden and a privilege. Marsha is so blessed to have you there with her.

Please tell her I send her my love. I now have a fourth grandchild; his name is Cody. Tell her my daughter Jenny's first published novel will be released Tuesday 7/11/06. She has a book signing at the end of the month. We are so happy for her and proud. Writer that she is herself, I think Marsha will enjoy hearing about this. Hugs and Blessings, Esther
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[User Picture]From: angelweed
2006-07-10 04:05 am (UTC)

Re: Marsha

Thank you!

Marsha sends love back to you, and she says she's happy and proud too.
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